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Roundtable: “Humanitarian aid for patients with orphan diseases: an efficient model of public-private partnership”

Artem Dubnov, Deputy Head of Parliamentary Committee on Nation’s Health, Healthcare and Health Insurance
Lada Bulakh, Head of Subcommittee of the Parliamentary Committee on Nation’s Health, Healthcare and Health Insurance
Mykhailo Zahriychuk, Deputy Minister of Health of Ukraine
Arsen Zhumadilov, Director General, state enterprize “Medical Procurements of Ukraine”
Tetyana Kulesha, Head of NGO “Orphan Diseases of Ukraine” Natalia Samonenko, doctor of Orphan Diseases Center, National Specialized Children Hospital “Okhmatdyt”
Yasmina Ahrens, Deputy Director of Humanitarian Programs, ICAP (International Charitable Access Program), Sanofi Genzyme
Maryna Slobodnychenko, lawyer, expert on public-private partnership in healthcare
Mykhailo Martynenko, patient with Gaucher disease who receives care within Sanofi Genzyme Program

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