Topic: “Orphan patients in Ukraine. Contemporary treatment of tuberous sclerosis: the right to normal life”

Andriy Gavryliuk, acting director of Medical Department, Ministry of Health of Ukraine
Tetiana Kulesha, head of the Council of Public Union “Orphan diseases in Ukraine”
Iryna Hladun, head of the NGO “Ukrainian Association for support of patients with tuberous sclerosis”
Oksana Yurynets, MP (“Petro Poroshenko Block” faction)
Liudmyla Verbova, PhD in Medicine, neurosurgeon at Pediatric Neurosurgery Department, Romodanov Institute of Neurosurgery at the National Academy of Medical Sciences of Ukraine
Olena Savchenko, director of Pediatric Neurology Department, National Special Pediatric Clinic “OHMATDYT”
Tamara Yarmoliuk, neurologist at a state-run clinic “Ukrainian medical rehabilitation center for children with organic disorders of nervous system” at the Ministry of Health of Ukraine
Stella Kushnirenko, PhD in Medicine, lecturer at the Chair of Nephrology, Shupyk National Medical Academy of Postgraduate Education